Do you people even remember how life was before being a diabetic. The freedom of eating any thing any time, the unplanned and pricks free life. Diabetes is sort of prison. Calculated dose calculated meal, the unexpected low ones specially at late nights and the high ones(hyperglycemia) making one urinate frequently with increased thirst. Its been 10 years for me. Its a mess. Happy Dia-anniversary to me
Imagine how wonderful life would be without diabetes.
Kimberly SP Sorry you’re feeling down. It really helps to focus on the positives. I’ve been diabetic for 28 years, and I really don’t think about those things that you mentioned. This is my life; I’m going to make the most of it. I’m not going to lie. I sometimes skip checking my blood sugar, and just take insulin based on what I ate, and then the next time I eat, I try and check. Sometimes I’m a “really good” diabetic and do everything like I’m supposed to do, and some periods of time, I’m a little lax on everything, but it doesn’t last long; I want to be around for a while. I honestly feel that diabetes has caused me to take better care of myself than if I was not diabetic, so as long as I’m diligent, and don’t think about how much I spend every year on diabetes supplies, it’s all okay.
Usman Khan Its really good that you are living a content diabetic life. Your diabetic story makes me think that diabetes isn’t a curse after all. But do you miss the freedom? the unplanned and less disciplined life?
Leigh Rollins I don’t really remember. I do know I used to eat frequently and never gain weight. It’s been 37 years with T1d.
Leigh Rollins Usman Khan I was 25 years young and in boot camp. Seems like a long time ago…..my primary care doctor (once I was discharged) did not believe I was T1. She put me on metformin, then 3 days later I was in DKA again.
Kathryn Johnson Sorry today is a bad day. I have been on this running wheel for 50 years. Having a pump has decreased the lows hugely and the highs too. I don’t remember much about life before. I was 11 at the time so you would think I could, but not really. I can remember the days and weeks leading up to diagnosis, which was horrible, but that freedom, no, I don’t. Wish I didn’t have this sometime, but all in all I have gained more with it than without. Have a blessed day. This isn’t the worst. When you see a child who has no hair because they are dying with cancer makes this easy. That was my turning point. I had a job delivering flowers. I walked in a room full of bald little girls. I was never the same. Went on to be a nurse. Diabetes is nothing in the grand scheme. Be brave, you can do this.
Shannon Hovden I don’t remember before being t1. I was 11 and going on 23 years with it. So, it’s changed my life completely.
Abdallah Bridja Actually no i do not remember , mainly because i got it when i was 3 so I’ve been in a diet my whole life , it’s not such a bad thing really I’d even say diabetes makes you healthy since you cannot eat junk food all as you please so pretty much you’ll be fit and well and of course there are times when you git sick of it , sugar going low , sugar going high and so on…
but it’s not really that bad you see , my mother always taught me to look at those unfortunate people who cannot even walk , sleep well and even have cancer . when i did i felt happy knowing that i am in a blessing so basically always look at the bright side , there are ups and downs but eventually they’ll disappear like a passing cloud
Patricia Dunsford I so agree. My mother was diabetic, so she raised us 3 kids on clean diets/living. I have only been diabetic the last 2 years (I am in my 60’s), but I was pre-diabetic for 20 years. Mine is hereditary, so I pretty much eat the same way as I always have. I do cut out almost all refined sugars. I am not on insulin, and only recently did the Dr put me on metformin.
Jess Joyner I don’t remember my pre-diabetes life. I was seven when I was diagnosed, so I all I really know is life as a diabetic.
I think it’s easier this way for me, honestly. I don’t know what it’s like to not have this disease, so I don’t have anything to compare it to.
Karen Gurney Sometimes I do miss the freedom to eat like other people. Sometimes I really miss the treats. However, I know that I am actually much healthier now. I watched a friend of my own age become home-bound, be constantly miserable, have numerous hospital stays and die early all because she would not change her diet and mindset. I miss the good times we had together. There are things we can’t control in life, but those we can affect can make a world of difference in our quality of life. So, every time I get discouraged, I think about my friend, stuck in a chair, on oxygen, unable to do much of anything. If I get to that point, I don’t want it to be because of things I could have done to help myself.
Christina Marie Cueto What I hate is that I’ve had to be careful about what ate from the time I was in high school because I was 30 lbs. overweight. I missed out on treats, wore myself out exercising only to keep gaining weight. I had just decided to give up after 20+ years & boom! I’m being diagnosed with diabetes. I kind of regret not allowing myself treats, so I’m with you.
Payton Ogan No, I don’t actually. Because I was 17 and it was a month before my 18th birthday and I can remember as far back as probably 10 years old, always feeling thirsty, so thirsty nothing could fix it. Then having to pee all the time. I’ve probably had this disease my entire life, and didn’t get diagnosed until 17. Anyway, after being diagnosed (as type 2 at first, the 1.5 years later a cpep test was ran and boom. Type 1) and getting everything under control (with MASSIVE burnouts up to today), I feel SO MUCH better! The thirst is there, but it’s not nearly as bad as it was before hand. And life quality is so much better since being in control, and it’s gotten even better since being on a pump and cgm!
Katrena Keys I was diagnosed at 3.5. So I don’t remember a life without diabetes.
And I’m fine with that.
Sometimes I wish I could eat/do whatever the hack I wanted. But at the end of the day, I’ve got it. It’s led me to some awesome friendships and opportunities. And I wouldn’t change it.
Goranka Pearson Take each day as it comes. I have been diabetic since 1987. Was only nine and don’t remember what was it like before.
Just listen to your body and do the best you can for yourself because you are no.1
Jamie Livingston West To be honest, I am so grateful for my diagnosis. Hear me out first. I am a 3rd generation diabetic. Both my dad and 1 of my grandfather’s died due to complications of theirs. My other grandfather died from other and my mom is still alive with hers.
Sure I was fit and “healthy” at diagnoses. I was also in the Army. I was newly married and around same time also found out I was pregnant. My entire life changed, literally.
But I am making wiser, smarter, healthier choices today. I wouldn’t be if I hadn’t been diagnosed. I am sure of that. I was raised on biscuits smothered in butter & corn syrup, coblers of all kinds, yummy (miss those) 😉 but also eating just about anything I wanted, because we can, right, at least that’s what they were taught, just bolus for it 🤔 all the unhealthy trash. I wasn’t thinking about healthy food choices at all.
But now I am. 22 years later. I am facing a more positive outlook with this disease even. I am spending many hours a week caring for fellow diabetics in critical care who didn’t always make better choices for their management. I’m working on my RN and aiming to be a diabetes educator one day. All because of my diagnoses and learning I am stronger than this disease. It took me 18 years to recognize the positive side to my diagnoses. It’s not always easy but I just remind myself of one thing … I’m a Diabetic with a purpose!!! We all be. It’s simply a mindset. 💙💪💙
Take the bad days and learn from them. You got this! Hang in there.
Jamie Livingston West Usman Khan can agree. But I also would add, once i adapted a Low Carb lifestyle my calculated and planned life became so much easier with less calculations and calculated guesses. It has become natural. Sure like everyone here, we wish we didn’t have to think about shots before eating, before workout, before bed, at wakeup, etc. But I just try to not think about all that cuz it’s just natural, second nature like now for me. An automatic response. Best of luck to us all
Brenda Neth I am grateful to write here and know that I am not alone, even though I am not on insulin. I somehow believed I wasn’t really diabetic because I just take metformin, but I am badly affected by the lightest amount of processed flour, fruit, or any sort of sugar. I grieve this, openly, for the first time, with you. Food has been my friend, and has nearly killed me. Now I need to learn to love it as a friend, without codependency! It cannot be there for me. It is only fuel, bottom line.
Brenda Neth Well guess, what, I don’t. Anyone listening. Comments please.
Kate Swanberg I think that there are times that we all try to justify those food choices that we make that are less than the best for our diabetes control. That meter lets us know that it wasn’t a good choice. So many complications can come from ignoring our diabetes. It can be a struggle when there’s temptation all around.
Janine Marie Diabetes is a tough gig. I’ve had it for 12 years. Sometimes it gets so overwhelming and unfortunately we don’t always get to choose the hand we’re dealt in life. What we do get to choose though is our attitude. I try hard everday to have an attitude of gratitude. Yes I can remember life before diabetes and yes I miss it but as you can see from the many comments a lot of people can’t. Remember, it could be worse! We’ve all got this
Joanna Miles 2015 for me. I miss enjoying food. I miss digging into a whole plate of carbonara, or mac and cheese. I miss enjoying cake with the works on it and English Christmas cake. I miss being skinny and being able to eat anything without putting on weight. Now it’s even harder to put on weight. I miss not knowing about blood sugar. I miss not wearing my pump (or not injecting). I miss not being able to just hit the gym or running without checking first where I’m at and monitoring it during a workout. I also miss having more than one craft beer…or reaching for a drink and not thinking about my. b.s….the end.
Paul J Berberich Sr. 52 years for me. The routine is so ingrained I almost don’t think about it. Having a CGM since January ‘19 has given me a new lease on life and the improved results give me great satisfaction.
The biggest challenge is to control what you can and accept what you can’t.
Leta Barton Stewart I have been a T1D for 49 years and I agree with Paul J Berberich, Sr. There have been so many awesome updates since 1970! Pumped for about 14 years, but went to MDI a year and a half ago and maintain an A1C below 6.
Donna Mayo Pierpoline 30 years for me. As I tell my brother who was recently diagnosed, you have to find a new “normal”. Many times I wish I was “normal “, but this is my reality.
Linda Gaylord When I get frustrated with diabetes, I try to think about what I would be like if I didn’t have diabetes. Would I be as empathetic to others or kind to those with disabilities and so forth? Try to think about the positive. Frustration sends my blood sugars up, so it only makes it worse thinking that way.
We’re here for you.
Charlotte Breshears Summer We all hear you and completely understand where you are coming from. I’ve been T1D for 37 years. I remember well the life before and I’m thankful I had that. God never gives us more than we can bear, and with problems, He gives us a way to stand up to it. There’s something (many things) for me to learn from this lifestyle and I try to be as positive as I can with what I’ve been given. So thankful for all the great things we have now that we didn’t have 37 years ago. Hang in there.
Jacob Sinnott 20 years next August. Can’t believe it. I was 7 when I was diagnosed. I actually don’t think I remember prediabetic life. I really don’t. I was about to say yes, but then I surfed around in my own head for a bit looking for some memory of just eating something, but it isn’t there. I can only remember the year leading up to my diagnosis and how goddamn sick I was.
Jacob Sinnott For some insight, my most significant memory is of carrying our new puppy up the stairs out of our basement, and nearly collapsing at the top of the stairs. A 6-9 pound puppy, and I was dead and crying at the top of the stairs. I believe it was that week that my doctor finally looked into possible diabetes.
Michael DeVito 35 years for me. I practically don’t remember my pre-diabetes past. Diagnosed at 28. I get frustrated occasionally, but I keep going…whatever it takes. Pump, GCM are revolutionary. If I was diagnosed 100 yrs ago I might not have made it to insulin.
Rick Matheson My friend, I was just diagnosed with T2 three months ago. I also suffer from Ankylosing Spondylitis. I’ve had that forty years. We are a tough group that, when allowed, have a lot of fun with people we love. Hang in there, you are not alone. PS, I hate it!!!
Jenni Jones I was diagnosed almost 3 years ago. So it is still fresh on my mind. Omg, the worst part about it all isn’t the food or the pricks, sticks and insertions, its not even realizing how ignorant people are and even I was regarding this disease…its the highs and lows at the worst times. In the middle of arguing with my teen, sudden drop. Gotta pick a kid up from practice, drop. Trying to get things done before leaving the house, drop. Scheduled to be somewhere, drop. Running to the arena as my daughter goes on stage, drop. Important plans the next day, stubborn high all night long. Family plans, high. Need to get things done, high. I swear my body knows when important things are happening and it works against me, lol. It doesn’t help that due to misdiagnosis, I have severe neuropathy so fluctuations increase my pain.
But yeah, before the disease changed everything, normal wasnt so boring, it was amazing.
Brian Donovan Two off the cuff thoughts. 1) My wife’s grandpa always used to say “it’s not so bad it couldn’t be worse”. Hell of a perspective
setter. This is from someone who grinded it out his whole life. Heath issues, tours on Navy ships, etc. 2) My daughter’s college essay anchored by everyone has their “diabetes.” It teaches you a lot and makes you stronger for it. Huge pain in the ass – but the fight must go on. 38 years with Type 1 I’ve learned that too. It’s OK to dream but then you have to hit your reality head on!
Martin Stolz Feel your pain. If you haven’t already, you may try finding or forming a cadre of fellow T1D’s. No other group of people can understand what you’re really going through.
Phil Mellea It’s been 53 years for me. It’s a battle every day. New Pump has certainly made life safer but the fact u walk around with a sensor and and infusion set just makes it me a little sad but I’m still very thankful. Stay strong be careful live life one day at a time.